#pots | Explore Tumblr Posts and Blogs

slushlushush · 2 days

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this is how every doctors appointment feels tbh 😭😭

#pots #potsie #postural orthostatic tachycardia syndrome #spoonie #multiple sclerosis #chronic fatigue #chronic illness #chronic pain #chronically ill #disability #disabled #disabilties

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chroniclesofchronicillness · 7 months

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This makes so much sense

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #potsandspoonies #100 percent

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vtk13 · 6 months

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“slut era” i whisper to myself as i rot in my bed, sick like a frail victorian child

#chronic illness #chronically ill #chronic pain #actually chronically ill #pots #pots syndrome #dysautonomia #fibromyalgia #postural orthostatic tachycardia syndrome #supraventricular tachycardia

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chronicallydragons · 4 months

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anyone else ever wish they could lie down harder? Like, I'm already horizonal, but I need more horizonal. I need to be absorbed by the floor. I think that would fix me

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mybodychoseviolence · 2 months

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“surely this will not cause my chronic illness to flare up,” i say, actively doing something that has never failed to flare my chronic illness

#chronic illness #chronically ill #chronic fatigue #chronic pain #disabled #disability #pots syndrome #potsie #pots #joint pain #migraine

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i-the-spoonie · 6 months

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#chronic illness #disability #mecfs #spoonie #pots #myalgic encephalomyelitis #actually disabled #mental health #chronically ill #spoonie memes #chronic fatigue syndrome #chronic pain #invisible disability #trauma

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stellaltumi · 3 months

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stop villanizing disabled people. stop assuming we're just being lazy. stop assuming we could be trying harder. stop assuming that we'll "feel better" in a few weeks. stop assuming that we have the same energy levels as everyone else. thanks for coming to my ted talk.

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love-me-love-my-weirdness · 2 months

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I think the reason why people want to know what's "wrong" with disabled people is because they want to reassure themselves.

They want you to say you were in a horrific accident or that you have a well known and treatable disease because they think they can stop it happening to them.

They think their health is a given because they aren't a dangerous driver/ an alcoholic/a drug user/obese/an unhealthy eater etc. Obviously this isn't true but it's easier for them to think of it like that.

Until one day they meet someone who did nothing. They're not really asking "what's wrong with you". They're asking "what went wrong" because they think they can avoid it.

So when they meet someone who made all the right choices, who was healthy, who was safe and one day woke up sick and never got better, it scares them because some part of them realises that it could happen to them.

They can exercise and eat a balanced diet and be as careful as possible and it doesn't do a thing and they can't do a thing about it. That terrifies able bodied people.

People like to look for something or someone to blame and they hate it when there's nothing there.

#chronic illness #chronically ill #fnd #chronic fatigue #actually chronically ill #chronic pain #pots #heds #actually disabled #ableism #disabled #physically disabled

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gayaest · 6 months

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[ID in alt-text]

Bora! She’s blasian (black and korean!) she has POTS (postural orthostatic tachycardia syndrome) and Chronic Pain! 🩷💜

She takes her rollator everywhere!

#my art #art #disabled artist #original characters #rollator user #pots #postural orthostatic tachycardia syndrome #chronic pain #babe with a mobility aid #disabled and cute #disabled oc

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389 · 28 days

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by Kim Jongsook

#art #kim jongsook #artist #artwork #glitter #shine #shiny #pots #plants #picture frame #u

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narcatsisst · 22 days

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i hate when i, a completely healthy person (very chronically ill), get sick (flare up) for no reason at all (i exerted myself way past my limit just cuz i didn’t wanna be “annoying”)

#chronic illness #actually chronically ill #chronically ill #potsie #pots #pots syndrome #spoonie #spoonies

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chroniclesofchronicillness · 8 months

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Sometimes best isn’t always possible

#chronic illness #chronically ill #chroniclesofchronicillness #chronic pain #invisible illness #invisible disability #spoonie #mental health #pots #svt #trigeminal neuralgia #just try

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seven-winged-liar · 3 months

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Finished and sealed GO pots!

I love how they turned out <3

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thatchronicfeeling · 6 months

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Reminder that it's less than a month before pharmacies will be closed for end-of-year holidays. Make sure that you will have enough medications to see you into the new year.

#chronic illness #ulcerative colitis #pots #postural orthostatic tachycardia syndrome #postural tachycardia syndrome #disability

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hellyeahsickaf · 4 months

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When I say "I can't do that" what I'm not saying is:

I don't feel interested in doing that

I don't care enough to

I'm too good to be doing that

I don't think you deserve that of me

I'm not in the mood to do that

Not now, I'll do it later

Maybe

If that's what I meant, that's what I would say

What I am saying is:

It will negatively affect me in ways I can't afford

I simply can't physically fucking do that

I can't risk the potentially severe consequences I may experience if I overestimate my ability to do that

And if I explain that I am unable to do that, it is not an invitation to:

Tell me how much my disability hurts your feelings

Ask if I'm sure

Interrogate me because you believe yourself to be the judge of how unwell is unwell enough

Put words in my mouth ("why don't you care?")

Tell me how easy it would be

Remind me of how many other things I've been unable to do. I keep the score more than you do

Accuse me of exaggerating or faking to avoid doing it

Ask me again shortly

Make assumptions about additional explanations. (I must be mad at you, I must not care about this)

Offer compensation in return ("I can pay you" "we can do something you want to do after" "I'll get you something you like")

Ask what it would take for me to suddenly be capable of doing it

Tell me how you do things you have to do when when you're tired and then you can just rest and recover. I am not like you

Remind me of a time I was able to do that. Either I had more spoons or was less severely disabled if at all.

Say that if I was well enough to do X today, I should be able to do this as well. Energy doesn't work that way. Are you capable of running 8 miles right this minute just because you were okay to work a 10 hour shift today? That's what I thought

Suggest simply doing it a certain way ("take your time", "do it sitting down", "we can stop and take breaks", "just take your painkillers", etc)

But it is an invitation to:

Leave me the fuck alone about it 💕

#chronic illness #chronic pain #disability #actually disabled #chronic fаtiguе ѕуndrоmе #spoonie #cfs #fibromyalgia #cfs/me #me/cfs #cpunk #cripplepunk #pots #long covid #yes this is about something that happened lmfao #feel free to add more #bc I am sick of this!#this is about physical disability. please don't derail it

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chronicsymptomsyndrome · 13 days

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I know its kind of silly to say “don’t feel bad for canceling because of pain, fatigue, etc” because I know guilt is a reflex you can’t easily refrain from. But you can reason with yourself so instead I’ll say this:

Nobody can feel what you’re feeling but you. Nobody knows the severity of what you would be putting yourself though if you were to “tough it out.”

If you do “tough it out,” the purpose for you doing the thing will most likely not be fulfilled anyway. You probably will not be mentally present or engaged. You probably will not have a good time or get much out of it. Etc.

If people really have such a problem with it, thats a huge red flag. Being transparent about your needs and boundaries is a great way to weed people like that out of your life.

If you have any kind of chronic illness or disability, remember that you probably have a very warped judgement of what is “reasonable” to endure in terms of pain, fatigue, burnout, etc.

You didn’t ask for this, you don’t deserve this, there is no reason you should have to bear the weight of it alone. I bet if someone else was in your position, you wouldn’t mind helping accommodate for them?

Low energy days are truly sacred, take them seriously. Please respect your body’s signals. “If you do not choose times to rest, your body will choose for you” or however the saying goes

It is so much pressure to have to deliberate what sacrifices are necessary for proper self care. Give yourself extra credit for having to deal with that stress on top of whatever is putting you in that position in the first place. Thats a lot at once

You are leading by example and showing others that you would never expect them to hurt or overextend themselves for your benefit. Putting yourself first always inspires other to do the same.

Please be proud of yourself for even considering canceling and putting your needs first. That is so strong of you <3

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